AN ACT FOR THE SUPPORT OF CAREGIVERS THROUGH IMPROVING RESPITE CARE

RSB/1/20

Sponsored by Becca Sharman of Franklin High School

This legislation was filed in the Human Services category

Presented as part of the YIG Volunteer 2024 conference

1 BE IT ENACTED BY THE TENNESSEE YMCA YOUTH LEGISLATURE
2
3 Section 1) Terms in this act shall be defined as follows;
4 a) Primary Caregiver: a person with the duty of taking care of a friend or loved one who is no
5 longer able to care for themselves (the beneficiary); often without pay
6 b) Beneficiary: the person being cared for by the caregiver
7 c) Respite Care: a service where short-term relief is provided for primary caregivers, giving them
8 time to rest, travel, or spend time with other family and friends
9 d) Respite Care Providers: workers who are certified as per section 2 of this act to provide respite
10 care (b)
11 e) Respite Care Provider Training: a series of free courses for those interested in providing respite
12 care as a career, a part-time job, or even a volunteer activity to individuals with varying
13 disabilities and ages
14 f) Tennessee Respite Provider Registry: a list of names and official contact information for those
15 who provide services of respite care
16 g) CHOICES: a TennCare program designed to provide older adults (age 65 and older) & adults
17 with physical disabilities (age 21 and older) who are eligible for necessary long-term services and
18 support in the home/community setting or in a nursing facility
19 h) In-home Respite Care: short-term care where a respite provider spends time in a private home
20 to assist in caring for the patient, providing short-term relief for the primary caregiver.
21 i) Commercial Respite Care Provider: a respite care provider who works with a private citizen-run
22 organization that is not a non-profit nor is associated with the state.
23 j) In-patient Respite Care: care where the patient is in a hospital or other facility for a small
24 period, giving the primary caregiver short-term relief
25 k) National Family Caregiver Support Program (NFCSP): a national service funded by Congress
26 provides grants to states and territories to fund various supports that help family and informal
27 caregivers care for older adults in their homes for as long as possible.
28 l) Federal Poverty Line: A measure of income issued every year by the Department of Health and
29 Human Services (HHS) used to determine your eligibility for certain programs and benefits
30
31 Section 2) A Respite Care Provider Training will be created and freely available on the Tennessee
32 government website through collaboration with non-profit organizations such as the Tennessee
33 Respite Coalition, wherein the curriculum will include:
34 i) What Respite Care Is
35 ii) Disability Basics for Respite Providers
36 iii) Client Care for Respite Providers
37 iv) Medication Awareness for Respite Providers
38 v) Safety Procedures for Respite Providers
39
40 vii) Wellness, Household, and Respite Activities
41 viii) Professional Ethics and Interpersonal Skills for Respite Providers
42 ix) Meeting with the Caregiver and Care Recipient
43 x) Next Steps in Becoming a Respite Provider
44 Additional courses will be provided on cardiopulmonary resuscitation (CPR) services. At the end of
45 each module, there will be an evaluation, and at the end of the course, there will be an
46 assessment. The prospective provider must earn an 85% or above to be deemed certified. They
47 will then be allowed to register in conjunction with section 3. They will also be allowed to apply for
48 the Coalition of Respite Care Providers, created in accordance with section 4
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50 Section 3) A Tennessee Respite Provider Registry will be created, to be accessed through the
51 Tennessee government website. Respite providers wanting to be certified in the eyes of the state
52 must submit proof of employment from a commercial agency or complete a certification through
53 the Respite Care Provider Training. They will provide contact information for potential caregiver
54 clients to consult with them through. The respite care provider would indicate whether they are
55 commercially associated or working under the state through the CRCP.
56
57 Section 4) The Coalition of Respite Care Providers (CRCP) will be created, being the entity of all
58 state-employed respite care providers, in order to provide a stable and certified avenue in which to
59 gain access to respite care providers as well as to work as a respite care provider. Employees will
60 have access to all government employee benefits and will earn a salary of $34,500 yearly. In
61 accordance with TN Code TCA 8-23-202 (2021), employees of the state will get paid semi-
62 monthly, therefore getting paid $1437.50 per pay period. If the number of employees in this
63 program exceeds the funding allocated to the Coalition, hiring will be suspended until this act is
64 revisited in a years’ time. If the funding has not been utilized fully by the end of the year, the
65 funds will roll over into the next year if the act is renewed: if not, the money not provided by the
66 NFCSP grant will be absorbed into the general state fund.
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68 Section 5) This act accounts for the creation of 20 new positions in the CRCP. When not providing
69 respite services, they will be in the employ of CHOICES for whatever position is deemed a best fit
70 in accordance with their capabilities. This does not impact their certification as a respite provider,
71 nor does it impact their position as part of the CRCP.
72
73 Section 6) These new programs will work in conjunction with and in the service of CHOICES,
74 wherein the Coalition of Respite Care Providers will be another service plan provided through
75 CHOICES or be available should the participant choose consumer direction.
76
77 Section 7): If a caregiver requests the services of a respite care provider through the CRCP, the
78 cost of the services will be differentiated by a sliding scale based on the income of the beneficiary.
79 Those who qualify for TennCare will not pay anything for respite services through the CRCP. Those
80 who do not qualify for TennCare but fall at or below 200% of the federal poverty line will pay a
81 reduced rate of $8 an hour. Those who are above 200% of the poverty line will pay $16 dollars per
82 hour for respite care. That money will be directly paid to the state, where it will become part of the
83 state general fund for paying state employees.
84
85 Section 8) The CRCP sliding scale of pay will only apply to in-home respite care and will not
86 provide for services such as in-patient care.
87
88 Section 9) If a beneficiary has commercial insurance that partially or fully covers respite care, they
89 are still eligible to receive services from the CRCP; however, they will have to pay out-of-pocket
90 the difference between what insurance covers and the cost of care.
91
92 Section 10) These provisions shall not prohibit the use of vouchers on commercial respite care
93 providers nor on state respite care providers. These provisions will not in any way alter the system
94 or requirements in which vouchers are subject to.
95
96 Section 11) This act will be revisited in a years’ time from time of enactment in order to assess the
97 effectiveness of the provisions and to repeal or renew as necessary.
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99 Section 12) Funds from the NFCSP grant will be delineated to the CHOICES program for the fiscal
100 support of these new provisions.
101
102 Section 13) All laws or parts of laws in conflict with this are hereby repealed.
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104 Section 14) This act will hereby set aside $840,000, funded through the Department of Health and
105 Social Services, in addition to any funding received from the NFCSP and profits from CRCP
106 services, for the hiring of employees and any additional cost incurred in the implementation of the
107 provisions in this act.
108
109 Section 15) This act shall take effect January 1, 2025, the public welfare requiring it.
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